: “unpredictable, Bays: his ‘wile Britt: ; : Thonias Be was: ‘well on hls-way to a. promising. career - In’ biological i research" ‘at’ Carleton University when ‘he experienced: the: first symptoms of 2 . Huntington's: ‘Disease 4% years dgo, >) ‘Sirice ther he's tried to Lake his owt life thre i times, he _ suffers from recurring bouta of depression and he: realizes. ; --that only: amedical - miracle ‘carr mye him. _ bral: edamage ‘a1 and death: * ° _ Betz is one of several thousand Chigdtans sitet ed i in C "the prime of life: by the'same. disensé: that ‘killed American oo folk’ ‘ainger® ‘Woody: Guthrie”. iY ‘Huntington's is ‘caused by an abnirmat ge gene. “Those. viho * live long enough, and every child with a parent who. has, the defect has.a,50-50 chance of inheritingits u - The: digease often produces. uncontrollable. Jerking: or::. twitching motions / Walking. problems. and alurred speech as, well as depression,: v Dereonality changes and other: ental: disorders, ° * 1 There is no treatment or cure —anid dosvay ti to ) detaeriine thie ‘presence:of the defective gene. early. in: life. ‘The first; real bymptoms of the: disease notmallyden't appear. until.» ee ‘PonORD" (CP) = The, Ontatio’ sélened Cais! ha has . hay¢ the: Benetic defect invariably. get the’ ‘dispase: HE they - a ; ‘Huntington’: 's, bul he mitted suicide before a a firtn Alagoa was made: Belz » brothers, who also has Huntington’ 8, ha three children, ‘three may develop 'the disease,” - ‘Huntington’ setrikes roughly one peru every 10; 000 in’: s North Aimerica, but the scope of: thé problem is even Jarger when ‘the. families of victims: are considered. * e's 'a family’ disease,” pays Britt, Betz. ‘verybeay uffering.”” : “Digs cari sometimes be used to treat specific symbto ~ of: Huntington's such as depression: But. anti-depressani '-Hadven’t*-really; helped. Thomas: Betz, ; and: ‘BOMne | experts. : belteve drug therapy often produces m more problems than it °~ solves. * nt * Research i nto ihe especie causes sft te dinetse still’ its infancy. , ‘ : Researchers: do. Inow: ‘Huntington’s Disease: jeads- to the: : 7 especially important task in. hard: ‘Jordingnose disease such _, death of some af the many, billions of | neurons _ ~ the. * WiSDY, “at, ihe. universe, whose. f elds of gravity draw i in. al wa opened a new astronomy exhibit calted Exploring Space, an passes, even light. ingenlous reed of gizmos, games and: movies'that brings out the litte kid in everyone.. : "People don’t come here to read signe on on the walls,” said descent’ toward: blackness, picking Up speed, but losing ‘uilt, and then more people.become nvolved to ensuré’ ; Tag - pverything is accurate and the’ ‘images. are clear.” °°. Jamie Bell, ‘chlef-of informatiog at therenowned tourtat attraction... n north Tororita. “They. come hire that’s the-boftom line om all our-exhlbits,”! 00°). atiniulating, simple-and-clear aporonch used throughout, the centre. ; Most elegant among’ thenew ‘displays ‘at “this ‘week's ‘ungeiling of the permanent exhibit was the model depiction before the fuel rungout and with aneye on the speedonieter: © (The trick is to.use the abort ‘button, a misnomer, tor . of.a black hole. Black ‘holee are enotttiously, dense, collapsed stara that whir Inenyeter oualy in the outer reaches, “Machine helps quadriplegics _ VANCOUVE:E (cP) - In an electrinies laboratory at the * University. of British Columbia, William Cameron ‘and:a _ team “of researchers are working on a machine that will. ‘enable quadripleglts to shave, comb thelr hair or. put-on, Lipstick. ve . Cameron, who worked in Japan on. “industrial robots - before joining thé university 10 years ago, saya nomachine _ on the market.can perform such badic tasks, His unit, 4 combination robot-camputer;, will, Bive. the. programmed. ‘Db ‘someone. without “a . “knowledge _ of handicapped d-measiire of indépendence anid ‘Capabilities the able-podled rotten take for: ‘granted. - “ _- Work siarted on the electronic arm last summer when the team met: with the disabled to discuss their needs. From _ _ those meetings, Cameron developed -his “wish list.” It’ fneludes simple things such as picking up a drink or turning. “the pages of a book,-as well’ as the-most difficult jobs — _ Bhaving or’putting on lipstick.. > When electrical and-mechantical ' design: began,. fuinetions ' Judged impossible or impractical were dropped and others . fot previously considered were. added, The team. has.” ” “benefitted “from .the involvement. of Gary. Birch, a’ ' quadriplegic who started with the. project. last year. while ; still a student and began work full time after, Sraduating from electrical erigineering this year. COULD BE DANGEROUS. aon Te Construction ofa an arm now is in progress, By September, : Cameron hopes to begin testing several prototypes. Robots. for, the ‘handicapped are being developed i in the. United States but Cameron said one project is under-f nded * and the other robot, developed - ‘from. industrial robot: : technology, might he too powerful. and therefore dangerous for a s handicapped persone; = An the display, four ateel balls are. réleased onto, a ‘keeily ‘sculpted fibreglass cone and begin a symmetrical, hypnotic.’ energy as they go. |; won “It’s 8 nifty demonstration, but the largest “audi ‘The object is to land the lunar. module ¢ on n the surface of the- moon, ‘with. varying point totals ‘awarded for the. _diffleulty of the landing ‘surface. But it’s got,to be done. _ ftraighten: the plunging. craft, then cut the speed. po Sent own robot arm is not strong enough to let a phone’ “It ip aconcem of ours to keep it safe but powerful enough _ todo the job. I hated to throw the phone book function out, but it made the ‘machine dangerows.”~ “Cameron: sald anyone who uses the phone book frequently "sould -Jeave it-on. the table. - . Thé team also Wanted the unit to be 50 simtie it could -be computers. :, ocomplish>-{his:: thes! are’ using - ‘a. - programing method ‘called hand-lead-through-teach. This . involves taking the arm manually through. the motions of a; : task. Once learned, the motions. ean’ be. repeated on ‘command. ; “This: type. of programming. is” especially useful “for - complicated manoeuvres such as hair-combing « or shaving. en it is important ihe head be in the’ same ‘Spot each e “It will bea simple, low-priced unit — well wider $10, 000. Almost any business can cough up $10,000 these days." By “developing the arnt. for industrial and’ medical use, Cameron says he can’ reduce price and .increase volume. | The project, started- by Cameron under a_ private company,'was turnéd over to UBC in: mid-development . becatise.he found it taxed his personal resources, He now has use of the school's facilities and more time-to work on, the project,-‘The university will use‘ oné of the completed “robots to. perform . maine, | tanks, Jn ia radioactive environment. ; Single fathers find fellowship ° VANCOUVER (CF) — Food is the first thing on the agenda ‘each. Thursday for the single fathers’ 8 weekly pot- luck supper and meeting. Five men prepare dinner in the tiny ‘Kitehen,. while their children, — five girls and a boy,.aged from. three-to nine . years — pound an old piano in an adjoining room. One fellow provides a couple of botties of red ordinaire to ’ complement the lasagna, another. man’s. contribution. “'There’s plenty of bread-and-butter’ an. a trait salad and whipping cream for dessert. Later, the men, a boatbuilder, a lanidscape designer,’ a gtudent, a welfare reripient.and a marine. engineer; w settle down for“thelr weekly twotiour-discussion ‘of the - ~ trials and tribulations that i crop up in the life of a sirigle dad. ° “Money, relationships. with. women, “work: -may, be: the .tolles of conversation — but the sharing that Happéns hare . is the important thing,”. says David-van- Stolk, 48: -“It's- something so specific that I.don't think it could happen, at, ‘ the tisk of sounding sexist, with women there.” +. - 0. Van: Stolk joined the group ‘lwo years ago when his - teenaged son, came to live, With, him after a hiatus of Ve years. “Finding fatherhood ugulte a challenge’ from not beig a a- ~ parent.to being-a parent, drom oné'day to. the next,” he sought ‘advice from booka and friends. A shop-window notice. for the single fathers’ group caught, hla. attentlon.. Single fathers are still a rarity, despite a, Téeper-cent increase in the leat five years. Canada’s 1981 census figures show a ‘total of 124,175 male-headed single-parent families -: {up from almost’ 95,000 in 1978)," (voripared with 600,000 : hen female-headed single: ‘parent famities. ‘ ve “) “I think Ihave iteasier than alot of single mothers, " says Alex: Tesaman, 28,-whoiwon custody ‘of. his: 24 year-old, : daughter and four-year-old son two years ago. “T have made it a point, that I carry’ on living my, fe and © find ways to include the ki He pulls them in a trailer behind his loepeed bieyole and bundles them off on camping trips. James McLean has revised his view of elngle piareithodd | . in the 34% years he’s been father‘and mother to two airs, ; aged eight and six. “} figured bringing up twa kids was easy, he recalls s ruefully. “Anyone could do it, you know? Now Iean see. the _ woman 'g side of it — ‘it's fot as easy as I figured.” McLean, a a Glasgow-born ‘marine engineer, ison his own - at 56... ; ‘All T can say is ] bumble along and somehow or other I get there. Sometimes it’s fun, sometimes it isn't.” ” Some of the men. complain about sexism. directed al ‘mates. who altempt a new kind of fatherhood. Oné tells how a social worker insisted he’d never be able toraise a baby girl; another of being the only man in a bevy ‘of single parents at a:community centre event. And one mentions a teacher who refused to discuss. his son 8 7 education with anyone: but the child’s mother. Although, single parents, be they inale or female, face .. comparable difficulties, men's experience is unique, says Keith Conroy, 40. . -- “Talking with alnglé mothers, I kept running Up against -, differences in conditioning, socialization. The things that seemed critical to me, the people T was talking to didn't Understand - — or , sometimes ridiculed. CN criticized “KAMLOOPS, B 3.0, (CP) — An Indian chief has accused an 1ental- assessment. panei studying ‘Canadian Natjonal, Railways’: plan to double-track its main line in ~ B.C, of putting too much emphasis dn fisheries and wildlife. “What abgut the people who live along the CN?” Edna Louls, chief of. the North. Thompson Indian band, asked _ panel chairman Bob Connelly on Tuesday. “I live near the track afd so. do hundreds of others.” of: incteaged. vibrations and noise since CN installed concrefa. ‘railway. ties, : Hans Velsbrich of Rayleigh said the vibrations have been ; terrible. Elizabeth iyne; hither resident, ‘aid she believes the . Vibrations are responsible for new cracks in the walls of her * 12-year-old home, - ‘She also said her china cabinet. ‘fas ‘been moved, ' décorator plates shaken off walls arid her sleep interrupted * by the vibrations. ©. ‘Aboiit 30 people attended the BY our necting to express their concérns. - . “‘Phomas and Britt have no children, ‘but one’of hia.three The . arm, which is: voice-activated ‘anid works | in. . -eonjunction with a home /eomputer, will also, have industrial. Louis: ‘and some residents of nearby ‘Rayleigh complained * al they. know, for research. relates: ‘to the biology of brain ‘cells: themselves, ml Ey etl ns "The bank ‘collects normal brane, ‘taken fi the ‘pody “medical research. WOW we It also. confirms oF. changes earlier diagnoses - -—-an “First, our astronomer comes ip wi his. ‘dea, _ sald: id. Bell. “Then he has to communicat » “But they usually: gay, “Show. ‘learn, there are 100,000 million galaxies in ‘BURNING: OUT . = Continues to burn toward eventual extinction int about 4'2 hilllon years, en ‘route toa general. destruction of the: . universe. Coe - * ‘This last prophecy is contained ina ‘transcendental film én the vastness of the universe, appropriately, narrated by. ' William: Shatner of Star Trek fame. ; According to theory, the universe may continue to expand forever, undermining - the. gravitational ‘glue’ that. holds " everything together and leaving little more than ‘cosmic “blackness: Or: “gravity ‘may win-out, gradually pulling all - - Ehings together 'to'a repeat of the enormous explosion that . zs ‘started it all off: long: ago... Unfazed by ‘Buch . reenatios: were. the astronauts of. ‘Cojumbia, shown ‘in’ another exhibit film ag they clowed wound: weightless: on a recent space. shuttle flight. | . Between : seriqus experiments: with: the impressive; . Canadian.designed . ‘Space arm, the astronauts are ‘shown. tipping through thelr spacecraft like kids on a wet slide and haging dinner by. letting biscuits float from their. hands to _ their moths. billion in 1970 U.S. dollars, v Py ta adlonkl owdnce © r | NEY GG — fw Teme - ————" -Myc addy ave Please help Re heap Mary dnd HUNTINGT Original leit ‘inteplateable cells ‘that transmit electrical impilaes in: the “as. + Hiuhlington’ 8. ‘brain'and thus control vital bodilyfunetions. That's about va, “We da-not know. how ‘the mutant’ eke cals, the Oy v desea in‘the: brain,' ys ‘Dr. i “pace of donations, but she adds there ia always ne . Barring : a breakthrough into the cause, treatment, 0 _ of Huntington's Disease, patlents and their famille ns. -\ chotee but to.try to cope as best ‘they can, ©: ~My husband left me as soon as 1: was: diagnosed,” ‘on “Dre “Catherie’ “Bergeran,* co-ordinator. of- the: Canadian * woman reported. ‘I feel, tremendously | ‘abaiidoned.”” Brain Tibsue Bank of Toronto, says another promising 4 area : ~ -The idea, she says, i to look for abnormalities’in the way . highly complex~ Proteins ‘are: ‘made within the ’ cells: . “within a few hours of death and. the brains of victims of a “number of. neurological Alseases, and freezes. them” for ; ‘teacher; ; “health professionals,” he says... -f. . However, . a |.:4 The new: exhibit ‘is replete with the’; “unfathomabl dear’ and aniey, ‘and ‘won bythe lunar lander, a video-game: affaly accompanied © ‘numbers and notions of. asttonomy: ‘For xample, visitors * . _ by the same Broans and addictive © pleasures of games In-a: Exploring Space, ariexlasion’ of” the ‘centre! ] ‘long: _Teal arcade,. -~. aE a a standing d kplay on U.S. manned apace ‘lights, follows the LUNAR LANDING - ‘And no space display would be icmplete without a moon. rock, a fascinating fraction of the 382 kilograms of rocks: if brought to Earth by six Apollo missions --,at a cost‘of $30 ” Since its creation in 1901; aimost, 200 ) brains have 2 bet: “ donated, including 18 affected by Huntington's. ‘Bergeron’ ae Pa ‘says that’s been a tremendous boost to research work “different. laboratories across. the. country.” “We've happy if it continties at that rate,” she says of ‘normal'”: brains.” Some obviously’ cope better: than others.’ :. ‘“H’s adeath ‘sentence,"” said another. “feel as if I've been “: . sentenced to spend the rest of my life in a dying body.""-Or _ ‘ad.a third put it: “‘I feel so guilty for ever having children," - They n now face, a life of terror.”” - 7 ‘Those comments notwithstanding, coping. bas become: oo easier since the formation of the Huntington Soclety.of - Canada, a non-profit group based in Cambridge, Ont., with 38 local chapters and hundreds of members across Canada, ‘Ralph Walker, a. former high school counsellor and ' founded the society, after - realizing “that - Huntington's. was +a: “not-go-rare rare disease” and thai ° families really had nowhere to turn for help. .o"From absolutely nothing 10 years ago, we now have. up. to-date information for families, for doctors and for ‘other _ the The-society conducts public education campaigns. about "Huntington's Disease, It got directly involved in financing ' < medical research -in 1977. and ‘has since made’ awards : _ totalling more than $400, 000. It played a major role in the’ _ creation of the brain tissue bank,“And It was a driving force - forming the.‘ Canadian: Coalition for Neurological 7 Diseases, a group that” co-ordinates. work: on.a. host of: mental disorders. its familly” ‘services, remain. especially important. — _ The society helps ‘arrange genetic counselling. to; mike 7 sure those who may be at risk are aware ofthe potential for ‘Beyond which exist puzzling quasars, emitting: more energy . < jin a seeond than the’ Bun emits in 10 million years. passing on a defective gene to the next generation. ‘The counselling is also intended to make sure that couples _-who want children have all the information they need to” _ And the § gun — a trifing bit of hot gas by these standards ‘. make a-raticnal choice about options such as adoption or... artificial ‘insemination. ~ . The’ society : operates: its: own augessment: and. referral centré in Toronto and plans to open a-similar centre in: _ Vancouver this sunimer.. Patients outside thoze areas are’ given information-about specialists : in neurology closer to * their homes. ° -Just as important is getting other kinds of help to patients . and their families. 3 A resource booklet distributed nationally by the society, ; ‘answers practical: questions about- day to-day. living and describes different types of therapy that may he helpful lo . patients. . The range | includes conventional physical, occupational: . nutritional and. speech therapy through music and horticulture therapy to’ nor-verbal communication ‘and swallowing therapy that’ are sometimes: required in. advanced: stages of the disease. “Huntington’s ia ‘not an easy.. disease to” ‘deal with,” Walker says of patients and their families. “They do need to . know that when there:are Probleras they. Are, ngt,slone.”, Further information may, be- ‘obtained by. writing The Huntington’s Society of Canada, 13 Water St. North, Sulte 3, -Box 333 Cambridge, Ont.'NIR 578. Telephone 519-622-1002. saris Oe 1) SO. GOES. nna ana Pleaseaccept my donation Ocveqe OVsa OMastercard Cardy : Eup. date